Patient and Family Support Groups

The following organizations provide patients and their families with educational, legal, medical, and personal assistance. Some of them also provide educational materials for physicians.

General Resources

American Academy of Neurology
- https://patients.aan.com/
Neurology: Official Journal of the American Academy of Neurology
- www.neurology.org
National Institutes of Health
- www.nih.gov
National Institutes of Health Clinical Trials:
- www.ClinicalTrials.gov

Acquired Immune Deficiency Syndrome

Gay Men's Health Crisis
- www.gmhc.org

Alzheimer Disease

Alzheimer's Association
- www.alz.org
Caring Kind New York City
- www.caringkindnyc.org

Amyotrophic Lateral Sclerosis

Amyotrophic Lateral Sclerosis Association
- www.alsa.org

Aphasia and Related Disorders

American Speech-Language Hearing Association
- www.asha.org

Autism

Autism Society of America
- www.autism-society.org

Blepharospasm

Benign Essential Blepharospasm Research Foundation
- www.blepharospasm.org

Blindness

American Foundation for the Blind
- www.afb.org
Lighthouse Guild
- www.lighthouseguild.org

Brain Tumors

American Brain Tumor Association
- www.abta.org
Children's Brain Tumor Foundation
- www.cbtf.org
National Brain Tumor Society
- www.braintumor.org

Cerebral Palsy

United Cerebral Palsy Association
- www.ucp.org

Down Syndrome

National Down Syndrome Society
- www.ndss.org/resources/local-support

Dystonia

Musicians With Dystonia
- www.dystonia-foundation.org/about-us/people/musicianswithdystonia
Dystonia Medical Research Foundation
- www.dystonia-foundation.org

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