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Individual and organizational investment in clinician well-being is required to sustain the careers of those providing care to the seriously ill. Among U.S. health care professionals in general, burnout is experienced by an estimated 54% of physicians, 35% of nurses, and 45% to 60% of medical students. Increased rates of clinician burnout have left health care organizations facing substantial costs from lost productivity and workforce shortages, prompting urgent calls to improve clinician well-being. Palliative care clinicians are not immune to burnout. A 2016 national survey by Kamal et al. of 1,357 palliative care and hospice clinicians found a burnout rate of 38.7%. Higher odds of burnout were associated with nonphysician clinical roles, working in smaller organizations, working longer hours, being younger than 50 years of age, and working weekends. A recent systematic literature review of 59 studies from 2008 to 2020 found a wide range of burnout rates, from 3% to 66%, among individuals providing palliative care. Burnout was more prevalent in generalized practice settings than specialized palliative care settings.
A career in palliative care can present many threats to well-being and, subsequently, workforce retention and growth. The nature of caring for seriously ill patients is a “double-edged sword,” in that it presents opportunities to experience great professional fulfillment, as well as presents the risk of burnout and other threats to well-being. Patient care can expose palliative care teams to suffering, death, and dying. Secondary traumatic stress syndrome, which can include difficulty sleeping, intrusive thoughts about patients, and a sense of a foreshortened future, is not uncommon among health care workers with frequent exposure to seriously ill patients, such as oncology staff and hospice and palliative care nurses.
In addition to direct patient care, many clinicians take on informal and formal roles supporting the well-being of other clinicians within their institutions. For example, palliative care teams provide consultations to primary teams on the most emotionally challenging cases, teach other clinicians how to break bad news, and facilitate debriefing sessions such as Schwartz Center Rounds, which is an interdisciplinary forum for discussion of the psychosocial and emotional aspects of patient care. These activities potentially further expose palliative care clinicians to secondary trauma, from witnessing patient and team distress, and moral injury related to inequities in health care access and ethical dilemmas.
When undertaken with appropriate organizational support and diligent self-care, a palliative care career also promises the opportunity to experience a deep sense of meaning and purpose in work. There is much to learn about the factors driving well-being and, conversely, burnout, over the course of a palliative care career. This chapter provides an overview of clinician well-being, evidence-based approaches to supporting well-being in palliative care, and strategies to drive organizational change enhancing the well-being of palliative care teams.
It is impossible to discuss well-being without acknowledging the conditions that lead to widespread clinician burnout, the growing awareness of which over the past decades led to its recognition as a national public health crisis in 2019 in the report “A Crisis in Healthcare: A Call To Action on Physician Burnout,” from the Massachusetts Medical Society and Harvard’s School of Public Health. The advent of the electronic health record (EHR), reimbursement rates that have not kept pace with rising health care expenditures, increasing documentation requirements, and greater patient complexity have led to more diffuse clinical responsibilities with burgeoning clerical tasks. Workplace inefficiencies, work–home conflicts, lack of input or control for clinicians regarding decisions impacting their work lives, loss of social connectedness and feelings of belonging, and insufficiently supportive leadership culture have also contributed to the current epidemic. Even efforts to improve physicians’ well-being have been met with limited success. For example, whereas reductions in house-staff work hours have improved overall work conditions, unintended consequences such as work compression and increased handoffs have emerged.
Burnout is characterized by emotional exhaustion, depersonalization (i.e., cynicism), and low sense of personal accomplishment. Burnout is commonly measured by the Maslach Burnout Inventory (MBI); other common assessment tools include the Mayo Clinic Well-Being Index, the Professional Quality of Life Scale, and the Resilience Scale. Other forms of emotional distress can be measured for a more complete assessment of well-being, including mental illness symptom clusters. It is important to note that the MBI and other assessment tools were not developed to diagnose an individual with a mental health condition, but rather to assess burnout of the collective workplace and thereby encourage employers to promote healthy work environments. Some authors have pointed out that what is being measured as “burnout” is actually a nebulous concept with roots in large-scale societal conditions. This chapter focuses on burnout and well-being as workplace conditions rather than as indicators of individual employees’ emotional health or distress.
The consequences of health care burnout are numerous and potentially grave. They include harms to the individual, including occupational injury, substance misuse, suicide risk, career regret, and suboptimal professional development. Additionally, health care worker burnout can result in harms to the organization and to society through impairments in professionalism, productivity, ethical practice, quality of care, quality of communication, and patient satisfaction. Burnout can also lead to increased patient safety incidents, malpractice claims, turnover, absenteeism, and presenteeism (i.e., showing up to work despite not feeling well).
Well-being, however, should not be defined as the absence of burnout. Clinicians may rightly respond negatively to such a categorization, as to become “burned out” implies an individual shortcoming, rather than capturing the full picture of the problem and its root causes. On the other hand, well-being is a subjective, complex, and far-reaching concept touching on all areas of one’s life—including those outside of work. Therefore many experts aim to narrow the focus of clinician well-being efforts to target factors that one’s workplace can reasonably influence, and place emphasis on minimizing barriers to well-being imposed by the workplace while maintaining sustainability of the workforce. With this lens, “professional fulfillment” has been proposed as a well-being goal for individuals and organizations within the health care workplace, as depicted in the conceptual model adapted by the Icahn School of Medicine at Mount Sinai, from the Stanford and National Academy of Medicine models ( Fig. 80.1 ). One publication addresses physician well-being as follows: “professionally fulfilled physicians—defined as those who experience happiness or meaningfulness, self-worth, self-efficacy, and satisfaction at work—are better equipped not only to practice the art and science of clinical care, but also to lead the effort to identify and implement much-needed improvements to our systems of care.”
At the time of this writing, the novel coronavirus pandemic has brought about unprecedented challenges to clinician well-being. Frontline clinicians and trainees have been placed at risk of infection, redeployed to new roles outside their comfort zones, and isolated from loved ones. Palliative care clinicians have witnessed unparalleled suffering and experienced much secondary, and in some cases, primary, trauma. The full impact of COVID-19 on clinician well-being is not yet known, and there is concern about the long-term consequences. When health care workers experience high levels of anxiety alongside ongoing uncertainty and lack of control, they are at risk for developing stress-induced syndromes. Physicians in particular may not access health care, especially mental health care, when needed, for a variety of reasons including lack of time, stigma, and perfectionism.
Institutions have approached COVID-19 well-being frameworks with a combination of rapid needs assessment and deployment of resources—including buddy systems, basic needs support, and expanded mental health programming—and an eye to a prolonged period of disaster recovery, characterized by waxing and waning emotional phases, mental health risks, and substance abuse risks. There is still much to learn about how to prioritize COVID-19–related well-being sequelae and also continue to address the “prepandemic” root causes of widespread burnout. More than ever before, health care institutions and the lay public recognize the need to address clinician well-being.
Interventions to prevent burnout and promote well-being should be twofold systems-level interventions (e.g., improve usability of the EHR) and individual-level interventions (e.g., cultivate a sense of meaning in work), with the goal of optimizing both personal resilience and workplace conditions. The following sections describe the existing evidence and expert recommendations for interventions to support well-being at both the systems and individual levels. The discussion highlights those that may be applied broadly to all clinicians, as well as those specifically designed for or most relevant to palliative care practitioners.
The system-level challenges to clinician well-being and the resultant negative impacts on patients have been widely recognized, and the need for action promoted as a core element of high-quality health care. The U.S. Centers for Medicare & Medicaid Services (CMS) has highlighted this priority by creating the new Office of Burden Reduction and Health Informatics. A recent report from the National Academy of Medicine calls on the health care system to take action against burnout by striving toward the following six goals: (1) create positive work environments; (2) address burnout in training and at the early career stage; (3) reduce tasks that do not improve patient care; (4) improve usability and relevance of health IT; (5) reduce stigma and improve burnout recovery services; and (6) create a national research agenda on clinician well-being. Table 80.1 describes the rationale for each goal, ways in which the goal may be pursued broadly to impact all clinicians, and specific ways action may be taken by palliative care programs.
Goal | Rationale | Goal-Oriented Actions to Benefit All Clinicians | Goal-Oriented Actions to Benefit Palliative Care Teams |
---|---|---|---|
Create positive work environments. | When clinicians feel safe, healthy, and supported, they are better equipped to provide high-quality, ethical, meaningful care. | Establish a chief wellness officer; design and implement interventions to improve well-being; optimize workload and task distribution; provide and destigmatize access to wellness and mental health resources. | Invest time and resources in building community, appreciation, and recognition; model prioritizing one’s own well-being and team well-being, including coverage and breaks when needed. |
Address burnout in training and at the early career stage. | Establishing cultural norms and well-being practices early in one’s training and career may improve retention and decrease poor mental and physical health outcomes. | Establish associate dean for GME well-being and other well-being leadership; leverage ACGME initiatives such as Back to Bedside; implement fair grading; enhance learners’ ability to contribute meaningfully to patient care; assess foreseeable impact of decisions (e.g., programmatic, re: accreditation/licensure/certification) on learner professional well-being. | Participate in institutional GME Well-Being Champion committee; develop well-being quality improvement projects; assign wellness buddy for trainees and new faculty; establish culture of well-being as shared priority; build well-being into training curriculum. |
Reduce tasks that do not improve patient care. | Myriad requirements on clinicians are burdensome and contribute to burnout. Administrative burdens are a barrier to patient care and diminish the patient experience. | Set standards at organizational, state, and federal levels; systematically assess laws, regulations, policies, and standards to determine their effects on clinicians and on patient care; reduce documentation requirements. | Partner with institutional clerical burden reduction efforts; assess work distribution so that each team member is working to the “top of license”; collaborate with department administrative support and leadership; invest in evidence-based interventions (e.g., scribes). |
Improve usability and relevance of health IT. | Inefficient and overly burdensome clerical work intrudes on time spent at the bedside and at home and lowers job satisfaction, while also indirectly lowering patient satisfaction. | Engage IT and health system leadership in making improvements to the EHR; appoint clinician EHR champions; offer trainings on customizable settings and templates. | Consider the impact of additions to note templates (e.g., when implementing changes to capture quality measures to support Joint Commission palliative care certification). |
Reduce stigma and improve burnout recovery services. | Reducing pervasive stigma and eliminating barriers to access are critical to improving the well-being of clinicians and learners. | Reform credentialing/licensing/regulatory inquiries into health history, such that only current impairments to one’s job performance (e.g., from active, uncontrolled substance abuse or mental illness) must be reported; create legal protections for those accessing care; address barriers to access created by the work/learning environment. | Leaders may consider sharing their own burnout and/or mental health experiences when appropriate; share resource information often; measure burnout and mental health distress and access to treatment. |
Create a national research agenda on clinician well-being. | Burnout rate is alarmingly high and negatively impacts the health care system. | Develop a coordinated research agenda with committed funding at the federal, state, organizational, and department/program levels. | Encourage interested palliative care faculty/clinicians to pursue well-being research, in particular strategies to improve well-being in the care of seriously ill patients. |
a This table provides recommendations for system-level approaches based on the six goals proposed by the National Academy of Medicine in the report “Taking Action Against Burnout.” The table proposes goal-oriented actions for health care leaders to apply each goal to improve well-being of clinicians in general (including palliative care clinicians) and of palliative care teams specifically.
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