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According to the World Health Organization (WHO), “Palliative care for children is the active total care of the child's body, mind and spirit and also involves giving support to the family. Optimally, this care begins when a life-threatening illness or…
Matthew was a red-haired little boy suffering from congenital microvillus inclusion disease, an autosomal recessive disorder that is characterized by intestinal failure and often treated with multivisceral organ transplantation. This patient and his family experienced a great deal of suffering.…