If we listen closely, children who are dying and their families will tell us everything we need to know to care for them: they want to be loved, to be cared for and cared about, to know that their lives…
Culture does not change because we desire to change it. Culture changes when the organization is transformed; the culture reflects the realities of people working together every day. —Frances Hesselbein, The Key to Cultural Transformation, Leader to Leader, Spring 1999…
In thinking about where your child will die, at home or in the hospital, you have to contemplate something that is utterly heartbreaking. Recognize that you are doing the hardest, most selfless, and most loving work a parent ever could…
It takes a village to raise a child. —Igbo Proverb This well-known Igbo proverb highlights the key role played by the community in the healthy development of its members. Such a community takes an active role in the transmission of…
I didn't know what ‘metachromatic leukodystrophy’ meant. I asked for an explanation and when they told us it was something to do with his brain I just kind of panicked and freaked out… His mental abilities are going to be…
Matthew was a red-haired little boy suffering from congenital microvillus inclusion disease, an autosomal recessive disorder that is characterized by intestinal failure and often treated with multivisceral organ transplantation. This patient and his family experienced a great deal of suffering.…
Life is so strange. Sometimes you feel it's like a book with chapters to fill, never ending. Sometimes it's like a chess game where you have to make each move so carefully. Other times it's like a mystery where each…
The medical art consists in three things — The disease, the patient, and the healer. —Hippocratic Epidemics , Book 1, Section 2 Epidemiology involves the science and art of comparison. While historically the ideas and tools of epidemiology were developed…
Words are deeds. The words we hear May revolutionize or rear A mighty state. The words we read May be a spiritual deed Excelling any fleshly one, As much as the celestial sun Transcends a bonfire, made to throw A…
Background Prostate Cancer as a Contraindication for Testosterone Therapy Numerous cross-sectional and longitudinal studies demonstrate that serum testosterone levels decrease with advancing age while the incidence of symptomatic male hypogonadism increases and may be as high as 500,000 new cases…