None of us is as smart as all of us. —Japanese proverb It truly takes a village to meet the complex needs faced by children with neurologic conditions and their families. Front and center to this village are the parents…
Facing the Future Every journey begins With but a small step. And every day is a chance For a new, small step In the right direction. Just follow your Heartsong. — Mattie Stepanek Many genetic conditions are inherited, while others…
Having the baby was a surreal experience; it was entering a world of unknowns and uncertainties. Would he be born alive? Would he live for minutes, hours, days, or months? —a mother For most, pregnancy is a time filled with…
Music, when soft voices die, Vibrates in the memory, Odours, when sweet violets sicken, Live within the sense they quicken. Rose leaves, when the rose is dead, Are heaped for the beloved's bed; And so thy thoughts, when thou art…
Beauty is not in the face; beauty is light in the heart. —Kahlil Gibran Skin disorders are often encountered in pediatric palliative care patients and can have both significant physical and emotional impact on a child's well being. The skin…
Request You, in white who maintains the healthy attitude, Respond to my mood. Persevere the facts, Chart efficiently, But don't discard feeling from a patient's history. A sentimental phrase or a known truth solemnly spoken is not required or desired.…
Digestion, of all the bodily functions, is the one which exercises the greatest influence on the mental state of an individual. —Jean-Anthelme Brillat-Savarin Palliative care no longer means helping children die well, it means helping children and their families to…
And by and by Christopher Robin came to an end of things, and he was silent, and he sat there, looking out over the world, just wishing it wouldn't stop. —A.A. Milne Of all symptoms that very ill children experience,…
There is no nobler goal than achieving the relief of pain and suffering. —Ronald Melzack Pain is one of the most common symptoms experienced by children receiving palliative care and one of the most feared by children and their families.…
Disease exists, if either sleep or watchfulness be excessive. —Hippocrates Since antiquity, sleep has been considered a time of healing, mending, and restoration. Sleeping difficulties are a significant issue for many healthy children and adolescents and are further increased in…