A happy birth to 150 million infants born this year. May those who rule provide the simple gifts of peace: shelter,food and water, education and health. But alas, though many millions are born, most are birthed alone with no one…
If we listen closely, children who are dying, and their families, will tell us everything we need to know to care for them: they want to be loved, to be cared for and cared about, to know that their lives…
Every obstacle I have overcome Has made me stronger in some way And to get the best out of life I must live it day by day. So this bump I've now stumbled upon Is no different from the rest…
Open full size image Vrksasana Magnificent tree reaching upward toward the sky grounding me Miraculous breath flowing throughout my body sustaining me Mind, body, spirit seeking balance and wholeness strengthening me —Robyn Petras With permission from “The Breathing Room: The…
My daughter has had heart surgery five times. Now the only option is a transplant. She was at home for a while, but now she is in the hospital with a ventricular assist device. She feels better, but being in…
None of us is as smart as all of us. —Japanese proverb It truly takes a village to meet the complex needs faced by children with neurologic conditions and their families. Front and center to this village are the parents…
Facing the Future Every journey begins With but a small step. And every day is a chance For a new, small step In the right direction. Just follow your Heartsong. — Mattie Stepanek Many genetic conditions are inherited, while others…
Having the baby was a surreal experience; it was entering a world of unknowns and uncertainties. Would he be born alive? Would he live for minutes, hours, days, or months? —a mother For most, pregnancy is a time filled with…
Music, when soft voices die, Vibrates in the memory, Odours, when sweet violets sicken, Live within the sense they quicken. Rose leaves, when the rose is dead, Are heaped for the beloved's bed; And so thy thoughts, when thou art…
Beauty is not in the face; beauty is light in the heart. —Kahlil Gibran Skin disorders are often encountered in pediatric palliative care patients and can have both significant physical and emotional impact on a child's well being. The skin…